Sinister: Wear your silver shorts today / And I won't go away

[honey at xxx.org]

Sinistereens,

I know you haven't heard from me for a long time, and you may
interpret this mail as selfish - it is really, in that I really want
to emphasise the importance of David's mail below.  In fact I should
probably mention I'm the listmum to some of you the newer residents,
as I've been so silent for a long time. Hi.

Some of you will know that my disappearance from public Sinister life
is largely due to the very same illness mentioned below: M.E. (some
of you in other parts of the world will see this called CFS, Chronic
Fatigue Syndrome, CFIDS and other terms).  I've had the illness 12
years now, and its severity has worsened a lot in the last year: I'm
housebound currently except for doctor visits, and mostly bedbound.
I hope some if this explains my disappearance, although I try to keep
the mailing list levers running in the background, as well as I can.
It may not be forever (the archives may be in trouble at some point,
but I'll try and let you know) but you're all quieter and very
well-behaved these days anyway.

The disease has been much maligned in the UK particularly, and this
research may prove vital in proving an organic origin, and pathways
to a cure.  It's estimated it affects 1 in 300 people in the UK, 25%
of whom are severely affected/bed-bound.

Anyway, I won't whine on, except to say that M.E. is a very B&S disease
to have for some reason as you can see from this mail and David's,
so it'd be very on-topic of you to donate, or bid in the auctions.
Stuart himself had it as mentioned below, and Ciara and Caleb, who
handle it considerably better than me, have it too, as do some others
I know who are or were on the list.  It's not something you want to
get: it can be a lifekiller.

I just wanted to add that if you do want to donate, and you're a UK
taxpayer, it may be possible to add 20% or more to your donation by
giving via Gift Aid. See:

http://www.gla.ac.uk/services/developmentalumni/giving/fromuk.html

Oh, and Ebay veterans will note that Ciara has zero feedback on Ebay -
it's above board, and I'll personally guarantee a refund if you need
such a guarantee.

Honey x


On Thu, 2 Jun 2005, David Moore wrote:

> Hi All,
>
> Bit late to tell people on here now, but just in case you don't know,
> there's an auction at e-bay
> http://search.ebay.co.uk/_W0QQsassZcmaclaverty at which you could get hold
> of Struan's silver trews! Or his Dennis The Menace & Gnasher t-shirt, as
> worn on Top Of The Pops! (Sure beats breaking into his flat to nick his
> clothes.) Or even a signed original copy of Tigermilk!
>
> Proceeds are all in a vital cause, research into understanding more about
> ME. All of you on this list know at least 3 people who are or who have
> suffered from it, so why not get involved?
>
> If you want to contribute or learn more, here are some links posted in
> another place by the organiser of the auction, Ciara (you know, the IYFS
> cover star) - I hope she doesn't mind me copying them here:
>
>
> "If you want to donate to the gene research study directly you would just
> send a cheque to Dr Gow, dept of neurology, Southern General Hospitals, 1345
> Govan Rd, Glasgow, G51 4TF and mark it 'for ME gene research study'.
>
> Another great charity interested in the right kind of biomedical research is
> MERGE. You can find case histories and sufferers stories. They take online
> donations
>
> http://www.meresearch.org.uk/index.html
>
> If you want to read my story in more detail (photo too!) here's an article I
> wrote a couple of years back. Thankfully I have improved slightly since
> then.
>
> http://www.cfids-cab.org/MESA/adv7.html
>
> As some of you know, I met Stuart in 1991 when he himself was ill with a
> long term post viral condition. ME can be a spectrum and some people are
> more severly affected. Stuart would readily admit that my illness was more
> debilitating than his, but he did have to pace himself and he felt 'flu
> like' for many years before recovering. Even now, he has to be careful about
> getting a healthy diet and enough rest. We did a 'best friends' article for
> one of the Scottish newspapers telling the story of how we became friends
> when we were both outsiders through illness. It didn't appear on line but I
> could post the text sometime (?)"
>
>
> An article about the dire need for cash to fund this research
> http://www.eveningtimes.co.uk/hi/news/5039240.html
>
>
> The revered name of papercuts appears again on Sinister, but sadly here
> http://www.papercuts.co.uk/cfs/intro.htm to outline the ME experiences of
> Sinister Old Boy Caleb Rudd.
>
>
> Yet another post from me in which I just copy & paste from elsewhere. My
> lack of originality laid bare once more. Hey ho.
>
>
> Love,
>
> David Moore
> Chelmsford, UK
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 +-+       "sinsietr is a bit freaky" - stuart david, looper           +-+
 +-+  "legion of bedroom saddo devotees" "peculiarly deranged fanbase" +-+
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 +-+               Nee, nee mun pish, chan pai dee kwa                 +-+
 +-+               Snipp snapp snut, sa var sagan slut!                +-+
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